Papworth Surgery

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General Practice Data for Planning and Research (GPDPR)

General Practice Data for Planning and Research (GPDPR)

Please note the Department of Health and Social Care have paused the collection of data to provide more time to engage with GPs, patients, health charities and others.

They have listened to concerns and are not now setting a specific date for the collection of data, instead they are committing to start uploading data only when they have the following in place

  • The ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded;
  • The backlog of opt-outs has been fully cleared;
  • A Trusted Research Environment has been developed and implemented in NHS Digital;
  • Patients have been made more aware of the scheme through a campaign of engagement and communication.

Together, these changes mean that patients can have confidence that they will have the ability to opt-in or opt-out of the system, and that the dataset will always reflect their current preference. And we will ensure it is easy for them to exercise the choice to opt-out.

09/08/2021

General Practice Data for Planning and Research (GPDPR)

From 1st September 2021 Papworth Surgery, like all GP surgeries, will legally have to allow sharing of patient identifiable data with NHS digital for health and social care planning and research purposes.

We are not allowed by law to refuse to share the information.

NHS Digital will also collect information from other healthcare providers, and will be able to publish and share this data. NHS Digital hope to use this data to help NHS planning of local services and to share with research organisations.

You can find out more about how and why NHS Digital want to use your data here: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/ general-practice-data-for-planning-and-research#additional-information-for-patients-andthe-public.

As a patient you can decide whether or not you wish your data to be shared, and you can tell us not to share your data with NHS Digital. It is important for you to understand there are two different opt out options:

Option 1 – known as a Type 1 opt out:

 This is to opt out of GP data sharing with GPDPR.
 Your information will not be shared from our clinical system.
 If you opt out before the end of August 2021, NHS Digital will not extract any of your data.
 You can opt out at a later stage, and no further data extractions will then take place.
 You can opt in again at any stage.
 You can use this online form to indicate your type 1 opt out: https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/
 You will find the relevant paper forms here (and shortly on our website too): https://digital.nhs.uk/your-data/opting-out-of-data-sharing
 You can email or write to us at admin.papworthsurgery@nhs.net clearly stating you wish to record a Type 1 opt out.

Option 2 – known as National Data opt out:

 This does not stop sharing from GP records to NHS Digital.
 This controls what NHS Digital is allowed to do with your data, you are opting out of NHS Digital sharing your health data (this includes any health data from other providers as well).
 There are several ways to compete the National Data opt out:
 Via the NHS App
 By calling 0300 303 5678
 Online at: https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/